Each Day More
Sometimes even a slight return to normalcy can be enough to keep you off a ledge. That's kinda the way I feel today. I'm exhausted and my body is screaming at me; and yet, I'm happier than I have been in weeks.
I actually feel like there is some hope. Last month I had a few horrible experiences with a physical therapist who turned out to only be a "physical therapy license applicant" who not only had no idea what she was doing but couldn't even speak enough english to understand my needs. She ended up damaging my spinal cord again. The muscle seizures have started back up again and I am on more Baclofen than I would like.
There is good news here too though; I now have a new physical therapist. He has a private practice and he's awesome. I'm already seeing small improvements and he seems to really understand my health issues.
On that note, I've also been reading and researching a lot about Transverse Myelitis. There isn't a ton of research out there and only one research center exists in this country. Johns Hopkins has a center in Baltimore that is making great strides. All I know is that if I get sick again like I was in February, I'm going to Baltimore.
If you're interested, information can be found here: Transverse Myelitis or here: Johns Hopkins
Labels: The Nun's Story
posted by Audrey @ 6:13 PM
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